Motor Neuron Disease (MND)- Status & Blog

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New Website For Motor Neuron Disease (June 2016 ).

There is No Effective Treatment. There is No Cure.

Please raise World Awareness by sharing on Facebook & using the link to this website

Please Contact this site using Contact tab (top).

Please use MND Blog tab (top) & we can help each other worldwide.

Public pressure is required contact & raise with your MP.

Time for change.

Website - Status

This website is under construction -

The website has been started to communicate by an MND Blog, MND News & e-mail Contact Form the latest information, treatments, contacts & links to useful websites for MND.

It follows an MND diagnosed patient from the start including useful information obtained, the most useful equipment  suppliers & medical help worldwide through a Blog

 

 

 

 

 

1. To raise the awareness & profile of MND worldwide to the public, medical experts, research experts, high profile

    people & people with new ideas - UPDATE - raised awareness through this website using Facebook & by public

    using link to this website & through music & social contacts in in UK, USA & Canada - result website climbed to top of

    Google under website name (5000 visitors)

2. To raise the importance of raising & progressing Genetic Coding & Stem Cell Research to cure MND & in turn provide a

    platform for curing most  diseases - UPDATE - At MND Conferences people are starting to listen to us but will not act nor advertise

    MND yet most of public do not know about MND except recent BBC TV where  patients want to take their life & still the

    MND Association will no  advertise saying all money goes to research but research in its present form is not getting

    the results so time for change new medical engineers & maximum public awareness to apply more public pressure is needed

3. To find out what is going on with MND, who is doing the MND work & making breakthroughs in MND, Genetic Coding &

    Stem Cell Research - UPDATE - author now on MND Research circulation lists for SITtraN - Sheffield University. Euan

    MacDonald Centre - Edinburgh University, Applied for circulation list to Chris Shaw, Kings College - London (Genetics) NO REPLY & Dr Alex

    Whitcliffe - Cambridge University AWR. Looking for MND Contacts in USA, Canada, Europe, Japan. Russia, Australia.

4. To get people with new ideas about MND together - UPDATE - see Important News below - BBC TV programme  

    Incredible Medicine - Dr Gabriel Weston - Principal is - getting experts in their medical field to specifically concentrate on one patient until an a

    treatment or cure is developed. BBC 2 TV Mondays at 9 pm The Human Body - Stem Cells organ specific now a Japanese scientist is developing

    new idea which is working & leading to trials on hearts

5. To get people with MND patients & personal experience together to determine how to pick up the disease early &

    quickly to be able treat it early & develop more accurate faster tests to determine the type of MND - UPDATE - Check out this website - Check out  

    how Scotland are doing see Important News July 2017 - Principal is concentrate on each patient & get to know what is happening in the real world &

    do something about it rather than go through standard clinics procedures & Government support

Website - Mission Statement

Important News -

6 January 2017

BBC TV  MND LINKS -

This link goes to the page with all the following links on - http://www.bbc.co.uk/search?q=MND+

SCOTLAND TO LEAD MND RESEARCH - http://www.bbc.co.uk/search?q=MND+

6 January 2017

BBC TV  FIRST ITEM MAIN NEWS 10 PM LIVE / DIE - http://www.bbc.co.uk/news/health-38500873

Update - patient allowed to  take the legal case to court

ICE BUCKET CHALLENGE - http://www.bbc.co.uk/news/health-36901867

SWANSEA UNIVERSITY MND POSSIBLE TREATMENT -

http://www.bbc.co.uk/news/uk-wales-south-east-wales-38318765

September 2016

BBC TV NEWS FRANCIS CRICK INSTITUTE -

New UK Centre for Biomedical Science with top experts in the world working together to make progress to find treatments leading to cures for complicated medical conditions.

This is an oportunity to raise MND awareness to this centre & the world & make real progress to a treatment & cure for MND.

The first of more than 1,200 biomedical scientists have moved into the new £650 million Francis Crick Institute in central London.

It will explore fundamental science questions around diseases like cancer, stroke, infections and neurodegenerative conditions in order to find new ways to prevent, diagnose and treat them. http://www.bbc.co.uk/news/health-37248197

FRANCIS CRICK INSTITIUTE DISAPPOINTING NEWS - CEO REPLY TO THIS WEBSITE STATES THAT THE INSTITUTE  WILL NOT BE RESEARCHING MND

29 October 2016

Check out MND Association Conference at Leeds

https://livestream.com/eventstreamingcompany/mnda

Video Reommendations - VIDEO NO. 1 AT TOP Research and Questions Dr Ramesh or our Director of Research, Dr Brian Dickie VIDEO NO. 6 2016 Keynote Speech - Professor Dame Pamela Shaw - Sitran - Sheffield

11 March 2017

Check out MND Association Conference at Taunton

https://livestream.com/eventstreamingcompany/mnda 

VIDEO RECOMMENDATIONS TO FOLLOW

March 2017 BBC 2

Check out BBC 2 TV Programme Incredible Medicine introduced by Dr. Gabriel Weston from her casebook - 4 out of 6 Episodes still available on BBC TV iPLayer at present 14 March 2017 - programme covers solving extreme medical conditions including Stem Cell replacement - Includes one MS patient where healthy stem cells are harvested then used to replace unhealthy stem cells - replacement appears to  have stopped the MS & returned the patient to normal health at present

http://www.bbc.co.uk/search?q=Incredible%20Medicine%3A%20Dr%20Weston%27s%20Casebook&suggid=urn%3Abbc%3Aprogrammes%3Ab08ghp29

18 March 2017

Check out the Oxford University Hospitals J R Hospital MND Clinic & MND Association Conference which we attended

MND Association awaiting vidoes & link from Oxford University

July 2017

Check out the latest  MND research going on at The Euan MacDonald Centre at Edinburgh University you will find it very intersting & giving hope

https://media.ed.ac.uk/search/searchkeyword/MND 

Check out to see how Scotland are taking MND seriously

https://www.care-mnd.org.uk/

25 September 2017

Authors View - This could be the breakthrough that may help solve MND

Check out BBC 2 TV Mondays at 9 pm The Human Body - Stem Cells organ specific now a Japanese scientist is developing a way to fool stems cells so that they can be used for any organ to grow new cells for organs

http://www.bbc.co.uk/programmes/b096slbg

MND Cure - Thoughts for today -

1. Low temperature - progressive precise application affect to slow motor neuron disease progress ?

2. Stem Cell Stem cell growth & replacement of damaged stem cells - replace stem cells  to prmote ealthy motor neurons - how do you distribute healthy stem cells through a long complex nervous system ?

UPDATE -  I believe Stem Cells harvesting & growth of healthy stem cells to replace unhealthy damaged stem cells will be very important & the key to solving MND  & other relative diseases (I will put money on it) See Important News on this Home Page March 2017 BBC TV programme Incredible Medicine - Dr. Gabriel Weston

3. Genetic code defect - how do you remove defective codes ?

    - could the genetic code be repaired through cross linking ?

    - genetic codes of MND related to other  medical conditions eg cancer, heart, neurodegerative, ....

4. Chemicals from exotic plants ?

5. Synthetic chemicals ?

6. New tests to diagnose before symtoms &  at early stages ?

7. There are many neurodegenerative diseases & conditions why arn't these cases  added to statistics - to add weight & momentum to research for a treatment & cure for MND ? Multiple Sclerosis, Parkinson Disease, Alzeimers & many other neurodegenerative diseases should be grouped together with MND as it could be considered that they are all  basically related & would raise world awareness higher & attract more funding & research as a strong group.

8. MND friendly ?- always check out with a supplier & for yourself that support equipment are MND Friendly & suitable for an MND Patient at all stages of the MND progression (Note - disabled toilets are to a minimum spec. normally used for partially disabled people & people in wheelchairs with big wheels & hand rims or electric wheelchairs / mobilty scooters who can manipulate themselves in to position - they are progressively more difficult for people with MND).

9. Faster drug testing processes - (Sitran) & direct testing of patients (USA).

10. Stop / slow down attacks on motor neurons, fast replication of rogue cells & defective genetic codes (Cancer techniques ? Parkinsons slowing down of disease breakthrough April 2017 released on BBC TV News ?)

11. New  class  of science & high tech engineering engneers required to work directly with MND & other neurodegenetrative diseases medical research

12. Can the latest Artificicial Intelligence, Robotics, Nanotechnology be used to  take over human motor functions to restore movement ?