Motor Neuron Disease (MND)- Status & Blog

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MND DEVELOPMENTS - UPDATED 13 APRIL 2018

IMPORTANT NEWS - latest date to top UPDATED 24  APRIL 2018

 

2018

 

24 April 2018

Microbiome

The human genome - the full set of genetic instructions for a human being - is made up of 20,000 instructions called genes.

But add all the genes in our microbiome together and the figure comes out between two and 20 million microbial genes.

"What makes us human is the combination of our own DNA, plus the DNA of our gut microbes."

Human cells make up only 43% of the body's total cell count. The rest are microscopic colonists.

This includes bacteria, viruses, fungi and archaea (organisms originally misclassified as bacteria). The greatest concentration of this microscopic life is in the dark murky depths of our oxygen-deprived bowels.

Science is rapidly uncovering the role the microbiome plays in digestion, regulating the immune system, protecting against disease and manufacturing vital vitamins.

The microbiome is also being linked to diseases including inflammatory bowel disease, Parkinson's, whether cancer drugs work and even depression and autism.

Understanding this hidden half of ourselves - our microbiome - is rapidly transforming understanding of diseases from allergy to Parkinson's.

More than half your body is not human - By James GallagherPresenter, The Second Genome, BBC Radio 4 10 April 2018

http://www.bbc.co.uk/news/health-43674270

 

12 April 2018

Research Open Evening 12 April 2018 in Edinburgh University at the Anne Rowling Neurology Clinic

Regenerative Neurology – nerve regrowth & nerve deterioration reverse ?

 

Authors Questions -

 

1.Regenerative Neurology – nerve regrowth ? nerve deterioration reverse ?

From my research & information gained from media & research sources stem cells are proving to be successful

I will put my money on stem cells

Any specific research being done on this & what progress has been made ?

 

2. MND, MS & Parkinson’s Disease – related ?

As these are related in neurology perhaps there should be more of a crossover of research for sharing breakthroughs to be used for mutual benefit

Any thoughts ?

eg cancer models, techniques & treatment approaches being used for other medical conditions now

 

Stem Cell progress -

MS patient cured using stem cells

Japanese researcher using non – specific stem cells to fool organs where each organ requires specific stem cells for specific organ growth

UK researcher using this stem cells technique to grow new hearts

 

3. High Electromagnetic fields Influence ?

We live near high electromagnetic fields & we have people with Cancers. MS, MND, Parkinson’s within a small radius of the source

Any research on this being done ?

We have a professor who we met through MND Association Seminars who would like to do measurements & research on this with us as she believes there is a neurological effect

 

4. Pneumonia & Flu Virus vaccinations – speeds up MND progress ?

My wife & I had the vaccinations in 2016 & were in a state of panic fighting to breathe afterwards – conclusion virus affects respiratory system

I declined the flu vaccination the second time in 2017 but the doctor gave it to my wife when I was not in the room

Do doctors understand how they might influence MND ?

My wife died with a few days of having the flu vaccination the second time starting with the respiratory system deterioration leading to oxygen deprivation leading the progressive shut down of the body & organ failure leading to pneumonia

Any research done linking MND & vaccinations & viruses ?

or was this just coincidental & to be expected ?

 

4. MND fast diagnosis – one to 2 days –

From our experience the diagnosis could have been done in one to two days but the NHS system does not allow this but fast track diagnosis is being introduced for some medical conditions

Any thoughts ?

Fast Tracking ?

New Diagnosis Equipment ?

New Diagnosis systems & procedures ?

 

 

Replies / Links awaited

 

 

2017

 

25 September 2017

Authors View - This could be the breakthrough that may help solve MND

Check out BBC 2 TV Mondays at 9 pm The Human Body - Stem Cells organ specific now a Japanese scientist is developing a way to fool stems cells so that they can be used for any organ to grow new cells for organs

http://www.bbc.co.uk/programmes/b096slbg

 

July 2017

Check out the latest  MND research going on at The Euan MacDonald Centre at Edinburgh University you will find it very intersting & giving hope

https://media.ed.ac.uk/search/searchkeyword/MND 

 

Check out to see how Scotland are taking MND seriously

https://www.care-mnd.org.uk/

 

18 March 2017

Check out the Oxford University Hospitals J R Hospital MND Clinic & MND Association Conference which we attended

MND Association awaiting vidoes & link from Oxford University

 

March 2017 BBC 2

Check out BBC 2 TV Programme Incredible Medicine introduced by Dr. Gabriel Weston from her casebook - 4 out of 6 Episodes still available on BBC TV iPLayer at present 14 March 2017 - programme covers solving extreme medical conditions including Stem Cell replacement - Includes one MS patient where healthy stem cells are harvested then used to replace unhealthy stem cells - replacement appears to  have stopped the MS & returned the patient to normal health at present

http://www.bbc.co.uk/search?q=Incredible%20Medicine%3A%20Dr%20Weston%27s%20Casebook&suggid=urn%3Abbc%3Aprogrammes%3Ab08ghp29

 

1 March 2017 

Check out MND Association Conference at Taunton

https://livestream.com/eventstreamingcompany/mnda

VIDEO RECOMMENDATIONS TO FOLLOW

 

6 January 2017

BBC TV  MND LINKS -

This link goes to the page with all the following links on -

SCOTLAND TO LEAD MND RESEARCH - http://www.bbc.co.uk/search?q=MND+

 

6 January 2017

BBC TV  FIRST ITEM MAIN NEWS 10 PM LIVE / DIE - http://www.bbc.co.uk/news/health-38500873

Update - patient allowed to  take the legal case to court

 

ICE BUCKET CHALLENGE - http://www.bbc.co.uk/news/health-36901867

 

SWANSEA UNIVERSITY MND POSSIBLE TREATMENT -

http://www.bbc.co.uk/news/uk-wales-south-east-wales-38318765

 

 

 

 

 

2016

 

29 October 2016

Check out MND Association Conference at Leeds

https://livestream.com/eventstreamingcompany/mnda

Video Reommendations - VIDEO NO. 1 AT TOP Research and Questions Dr Ramesh or our Director of Research, Dr Brian Dickie VIDEO NO. 6 2016

Keynote Speech - Professor Dame Pamela Shaw - Sitran - Sheffield

 

September 2016

BBC TV NEWS FRANCIS CRICK INSTITUTE -

New UK Centre for Biomedical Science with top experts in the world working together to make progress to find treatments leading to cures for complicated medical conditions.

This is an oportunity to raise MND awareness to this centre & the world & make real progress to a treatment & cure for MND.

The first of more than 1,200 biomedical scientists have moved into the new £650 million Francis Crick Institute in central London.

It will explore fundamental science questions around diseases like cancer, stroke, infections and neurodegenerative conditions in order to find new ways to prevent, diagnose and treat them. http://www.bbc.co.uk/news/health-37248197

FRANCIS CRICK INSTITIUTE DISAPPOINTING NEWS - CEO REPLY TO THIS WEBSITE STATES THAT THE INSTITUTE  WILL NOT BE RESEARCHING MND