Motor Neuron Disease (MND)- Status & Blog

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MND LATEST PROGRES - Awaiting replies from Edinburgh University MND Research

EDINBURGH UNIVERSITY MND & NEUROSCIENCE / NUEROLOGICAL RESEARCH

25 April 2019

 

MND QUESTIONS TO EDINBURGH UNIVERSITY

Based on –

Independent MND Website www.motorneurondisease.co.uk

 

Being a full time carer for wife with genetic C9ORF72 for 3 years

Investigating & successfully solving all problems for care techniques / facilities / equipment

Independent investigation of all the latest MND & related medical developments UK & worldwide

Raising awareness of MND & donations for MND Research UK & worldwide (2018 directly in Australia & New Zealand & taken to USA & Japan)

 

1.CELLS – TOXICITY – ATTACK – slow / stop attack

 

 

 

 

 

2.MOTOR NEURONES – re-growth / grow new ones

 

 

 

 

3.STEM CELLS  -  grow new motor neurons – absolute belief in Stem Cells proven cures evidence – RESEARCH BY Japanese scientist in fooling stem cells to grow a range of organs in particular hearts – this is also being investigated & researched  by British scientists – Stem cell have cured MS patient – my friend from my teenage years has had cancer in legs & received stem cells from a donor & appears to be recovering from my observation

 

 

 

 

4.CERVICAL CANCER NEW AUTOMATIC FAST DIAGNOSIS TEST – develop new test / similar test – not waitng 2 to 3 years for diagnosis when diagnosis could have been done in half a day even allowing for abslute confirmation of diagnosis thus allowing more meaningful testing & medical trials

 

 

 

 

5.PARKINSONS DISEASE – NEW BRAIN STIMULATION – significant improvement of condition which is lasting so far

 

 

 

6.ELECTRO-MAGNETIC FIELDS – contribution & effects on MND  / research required / I live near a large high voltage national grid line – within 100 – 150 Metres cables we have had people with MND (my wife), Parkinson’s Disease (1person), Cancer (5 people), Dementia (1person), MS (1 person) – just coincidence ??? – I have a report from the National Grid claiming no problem – I have a report from investigators in Sweden who claim high voltage power lines cause serious health problems similar to those listed

 

 

 

 

7.TRAUMA INJURY – head / spine contribution to MND / research required (my wife had several Traumas before MND (head injury cracked skull hit by car, breast cancer both breasts, head split open at back after being thrown in a bus emergency stop, falls) & during MND (falls)

 

 

OPEN EVENING

Further to my attendance on 10 April 2019 at the Edinburgh University Research Open Evening in The Anne Rowling Clinic & meetings & discussions with all concerned in particular with all researchers & Professor Siddharthan Chandran

 

INFORMATION

I welcome information about relevant research & significant developments

 

GUIDELINE TO ANSWERING MND QUESTIONS & RECENT SIGNIFICANT MEDICAL SCIENCE INVESTIGATIONS & DEVELOPMENTS

1.Awareness ?

2.Any research ?

3.Research specifics ?

4.Research progress ?

5.Research expectancy ?

6.Research timescale ?

7.Any significant results ?

 

 

RECENT SIGNIFICANT MEDICAL SCIENCE INVESTIGATIONS & DEVELOPMENTS

 

REF - MND Association UK

Spotlight MND Research - Matthew Nolan D. Phil candidate Clinical Neuroscience – Oxford University

 

RESEARCH - UNLOCKING GENETIC SECRETS OF MOTOR NEURON DISEASE

Using Brain tissue samples –

Theory –

Tiny genetic mistakes as body grows

Neuropathology – minute cellular processes

Now can single out individual motor neurone cells to study

Why disease arises in the first place

 

REF BBC TV & Radio 2 News

GENE-SILENCING: 'NEW CLASS' OF MEDICINE REVERSES DISEASE PORPHYRIA

https://www.bbc.co.uk/news/health-47907971

REF MND Association

Genes that cause inherited MND

To date, we know approximately 70% of the genes known to cause inherited MND. The most common genetic mistakes are:

•SOD1, discovered in 1993, accountable for 20% of cases of inherited MND

•TARDBP (TDP-43), discovered in 2008, accountable for 3-5% of cases of inherited MND

•FUS, discovered in 2009, accountable for 3-5% of cases of inherited MND

•C9ORF72, discovered in 2011, accountable for around 40% of cases of inherited MND

 

Regards

 

Chris Allsop

BSc(Hons). Dip. Comp.

Oxford

chrisallsop31@talktalk.net