From MND Association (registered charity)
Patron Professor Stephen Hawking (MND diagnosed & appeared on USA TV series Big Bang Theory)
As promised here are a few links which may be helpful and my contact details (at the bottom):
•http://www.mndassociation.org/ (Home page of our website, lots of information including on research, an area for professionals, lots of helpful information, Twitter, Facebook, Fundraising etc see also links below)
•http://www.mndassociation.org/getting-support/ this tells you all about the different ways we can help, the online forum, grants etc
•http://www.mndoxfordshire.org/ the local branch of the Association
We also have a really good newsletter called ‘Thumbprint’ I’ll try and make sure you get a copy.
Anything else you need do get in touch.
Best wishes - kathy
Kathy Hymas - Regional Care Development Adviser for Thames Valley, Motor Neurone Disease Association
Tel: 03453751854 Mobile: 07831349395 firstname.lastname@example.org www.mndassociation.org
Complete Care Shop
www.completecareshop.co.uk This company has every type of support equipment you will ever be likely need in its product range
ALS From Both Sides
Diane Huberty, Neuro Certified Regsitered Nurse & ALS Patient
Excellent site covering very usefull information for MND / ALS diagnosed patients, carers & families. It is by an ALS Patient & Qualified R.N.who has worked in the Neurological field. Diane's experience covers everything you need to know covering how to deal with practical & medical issues.
The website site has been contacted by the author with a view to geting approval to refer to the website on this website.
The author is awaitng reply.
We wish Diane the best of luck. Hang in there treatment leading to a cure is not far away.