Action Notes - Author to Do
1. MND Association request to accept a link to www.motorneurondisease.co.uk from their website
2. Professor Stephen Hawking - to contact through Cambridge University ? - Dr Alex Whitcliffe MND Research contact October 2017
3. TED American TV series solving complex problems e-mailed - reply received & offered help
4. Nancy Frates (Ice bucket challenge on Youtube in 2014 to raise funds for MND ALS - to try & contact through Facebook / Youtube for information exchange UK to USA
5. 1 September 2016 BBC TV News -
New UK Centre for Biomedical Science with top experts in the world working together to make progress to find treatments leading to cures for complicated medical conditions.
This is an oportunity to raise MND awareness to this centre & the world & make real progress to a treatment & cure for MND.The first of more than 1,200 biomedical scientists have moved into the new £650 million Francis Crick Institute in central London - to contact by telephone as do not respond to e-mail.This Francis Crick Institute reply was that it will not be doing anything for MND.
6. To contact worldwide top companies with think tanks, top successful businesses, universities doing latest MND research, top famous influential people, other countries working on MND, people in related work to tap expertise & put people in contact with each other.
7. TV advertising campaign - contacted ITV who will help & have supplied advertising costs - to research MNDA for previous advertising & whether they are interested in new advertising - MND Assciation do not plan to advertise but support research only.Will try Open University & propose an MND Research Documentary.
MND Notes -
MND ALS Patients contributing to research at JR Hospital, Oxford in 2016 - confirmed
Biomarker MND ALS disease model under contruction in 2016 in research (Lumber Puncture fluid).
Genetic Coding research - (DNA manipulation)
Stem Cell research - (laboratory potential growth of new organs & nuerological systems parts
Meeting & possible anouncements at JR Hospital, Oxford - Easter 2017 - no significant progress more
of a repeat of other conferences.
MND - Medical Conferences -
MND Association Conference at Leeds - November 2016
MND Association Conference at Taunton - 2017
MND Association Conference at Saad Business School at Oxford - 2017
Oxford University Hospital - Presentation - Latest MND News