Motor Neuron Disease (MND)- Status & Blog



IMPORTANT NEWS - latest date to top UPDATED 27  APRIL 2018




27 April 2018

How knowing your genetic code could lengthen your life

By Adi Gaskell & Matthew Wall Technology of Business, BBC News

A firm called Oxford Nanopore has even developed a hand-held reader that can sequence genetic material in minutes.

Dr Gordon Sanghera, the firm's chief executive, talks about creating "the internet of living things - real time connection of live DNA information" using such portable devices.

A single strand of DNA is one ten-thousandth the width of a human hair, but the hand-held reader, called MinION, squeezes each strand through a tiny hole - the nanopore - and reads its electrical signals. These signals are instantly converted into a DNA sequence.

Within the next 10 years, "everyone will get sequenced at birth", he says, and we'll be able to assess whether we have genetic dispositions to particular diseases and take preventative steps accordingly.

There are great hopes that such genomic data, analysed by artificial intelligence (AI), will help speed up the diagnosis of cancers and lead to more targeted treatments.



24 April 2018


The human genome - the full set of genetic instructions for a human being - is made up of 20,000 instructions called genes.

But add all the genes in our microbiome together and the figure comes out between two and 20 million microbial genes.

"What makes us human is the combination of our own DNA, plus the DNA of our gut microbes."

Human cells make up only 43% of the body's total cell count. The rest are microscopic colonists.

This includes bacteria, viruses, fungi and archaea (organisms originally misclassified as bacteria). The greatest concentration of this microscopic life is in the dark murky depths of our oxygen-deprived bowels.

Science is rapidly uncovering the role the microbiome plays in digestion, regulating the immune system, protecting against disease and manufacturing vital vitamins.

The microbiome is also being linked to diseases including inflammatory bowel disease, Parkinson's, whether cancer drugs work and even depression and autism.

Understanding this hidden half of ourselves - our microbiome - is rapidly transforming understanding of diseases from allergy to Parkinson's.

More than half your body is not human - By James GallagherPresenter, The Second Genome, BBC Radio 4 10 April 2018



12 April 2018

Research Open Evening 12 April 2018 in Edinburgh University at the Anne Rowling Neurology Clinic

Regenerative Neurology – nerve regrowth & nerve deterioration reverse ?


Authors Questions -


1.Regenerative Neurology – nerve regrowth ? nerve deterioration reverse ?

From my research & information gained from media & research sources stem cells are proving to be successful

I will put my money on stem cells

Any specific research being done on this & what progress has been made ?

Edinburgh University aanswer to be added

2. MND, MS & Parkinson’s Disease – related ?

As these are related in neurology perhaps there should be more of a crossover of research for sharing breakthroughs to be used for mutual benefit

Any thoughts ?

eg cancer models, techniques & treatment approaches being used for other medical conditions now

Edinburgh University answer to be added

Stem Cell progress -

MS patient cured using stem cells

Japanese researcher using non – specific stem cells to fool organs where each organ requires specific stem cells for specific organ growth

UK researcher using this stem cells technique to grow new hearts

Edinburgh University answer to be added

3. High Electromagnetic fields Influence ?

We live near high electromagnetic fields & we have people with Cancers. MS, MND, Parkinson’s within a small radius of the source

Any research on this being done ?

We have a professor who we met through MND Association Seminars who would like to do measurements & research on this with us as she believes there is a neurological effect

Awaiting investigation

4. Pneumonia & Flu Virus vaccinations – speeds up MND progress ?

My wife & I had the vaccinations in 2016 & were in a state of panic fighting to breathe afterwards – conclusion virus affects respiratory system

I declined the flu vaccination the second time in 2017 but the doctor gave it to my wife when I was not in the room

Do doctors understand how they might influence MND ?

My wife died with a few days of having the flu vaccination the second time starting with the respiratory system deterioration leading to oxygen deprivation leading the progressive shut down of the body & organ failure leading to pneumonia

Any research done linking MND & vaccinations & viruses ?

or was this just coincidental & to be expected ?

To be investigated by Anne Silk  Visiting Fellow Public Health Bournemouth University, Hon DSc, FRSM, FRSA  MIofPhysics & Professor Pritchard   Studying PSP, MSA & MND.  Target May 2018      

4. MND fast diagnosis – one to 2 days –

From our experience the diagnosis could have been done in one to two days but the NHS system does not allow this but fast track diagnosis is being introduced for some medical conditions

Any thoughts ?

Fast Tracking ?

New Diagnosis Equipment ?

New Diagnosis systems & procedures ?

Edinburgh University answer to be added & see above 27 April 2018 How knowing your genetic code could lengthen your life


Replies / Links awaited





25 September 2017

Authors View - This could be the breakthrough that may help solve MND

Check out BBC 2 TV Mondays at 9 pm The Human Body - Stem Cells organ specific now a Japanese scientist is developing a way to fool stems cells so that they can be used for any organ to grow new cells for organs



July 2017

Check out the latest  MND research going on at The Euan MacDonald Centre at Edinburgh University you will find it very intersting & giving hope



Check out to see how Scotland are taking MND seriously



18 March 2017

Check out the Oxford University Hospitals J R Hospital MND Clinic & MND Association Conference which we attended

MND Association awaiting vidoes & link from Oxford University


March 2017 BBC 2

Check out BBC 2 TV Programme Incredible Medicine introduced by Dr. Gabriel Weston from her casebook - 4 out of 6 Episodes still available on BBC TV iPLayer at present 14 March 2017 - programme covers solving extreme medical conditions including Stem Cell replacement - Includes one MS patient where healthy stem cells are harvested then used to replace unhealthy stem cells - replacement appears to  have stopped the MS & returned the patient to normal health at present



1 March 2017

Check out MND Association Conference at Taunton




6 January 2017


This link goes to the page with all the following links on -

SCOTLAND TO LEAD MND RESEARCH - http://www.bbc.co.uk/search?q=MND+


6 January 2017

BBC TV  FIRST ITEM MAIN NEWS 10 PM LIVE / DIE - http://www.bbc.co.uk/news/health-38500873

Update - patient allowed to  take the legal case to court


ICE BUCKET CHALLENGE - http://www.bbc.co.uk/news/health-36901867
















29 October 2016

Check out MND Association Conference at Leeds


Video Reommendations - VIDEO NO. 1 AT TOP Research and Questions Dr Ramesh or our Director of Research, Dr Brian Dickie VIDEO NO. 6 2016

Keynote Speech - Professor Dame Pamela Shaw - Sitran - Sheffield


September 2016


New UK Centre for Biomedical Science with top experts in the world working together to make progress to find treatments leading to cures for complicated medical conditions.

This is an oportunity to raise MND awareness to this centre & the world & make real progress to a treatment & cure for MND.

The first of more than 1,200 biomedical scientists have moved into the new £650 million Francis Crick Institute in central London.

It will explore fundamental science questions around diseases like cancer, stroke, infections and neurodegenerative conditions in order to find new ways to prevent, diagnose and treat them. http://www.bbc.co.uk/news/health-37248197